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Forms are available for downloading:

Forms are available in pdf format and require Acrobat Reader to open them. If you do not have Acrobat Reader, you can download it for free from the Adobe website.

General information about the International Dysferlinopathy Registry (recruitment leaflet).
Documents for patients:
  Information for (Adult) Patients
  Information for Children
  Registration and Consent Questionnaire (I) - to be completed by the patient
  Registration Medical Questionnaire (II) - to be completed by the patient
Documents for medical doctors:
  Information for Medical Doctors (in English)
  Consent for Medical Doctors (in English) - to be completed by the patient's physician
  Registration Medical Questionnaire (III) (in English) - to be completed by the patient's physician